• Snot Flickerman@lemmy.blahaj.zone
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    6 months ago

    Just so everyone knows, you can’t really transplant dead organs (at least not as safely or with the success of live organs).

    They can only use your organs if you die in a hospital setting. They will keep pumping blood to your organs after you die to keep them “fresh” and “alive.”

    Post-death organ transfer exists but is way more risky than an organ that was recently in a living, functioning body.

    So if you’ve ever considered it, keep in mind that you have to die at a hospital for it to happen, and even then, they’re still technically forcing your body to be alive to keep these organs alive.

    Source: Friend who lost his leg to amputation during a COVID-coma. They didn’t think he would make it. He woke up in the donor ward. EDIT: Just to be clear, this happened during peak COVID before the vaccines when bodies were just piling up everywhere. I don’t think a coma patient waking up in the donor ward is a normal thing, I think it happened because COVID was a fucked up situation and people were overwhelmed.

    • OsrsNeedsF2P@lemmy.mlOP
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      6 months ago

      What does it even look like when you wake up in a donor ward? Was he a write-off and the doctors were just like ‘oh shit, he’s awake’? Do non-donors simply get disposed of instead of being brought there?

      • Snot Flickerman@lemmy.blahaj.zone
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        6 months ago

        He’s older and it’s been tough to get explicit details from him, but yeah it sounds like because it was during COVID and beds for bodies were so scarce, on top of the fact that they didn’t have high hopes for him surviving (so many people his age with COVID just never made it), that they were keeping in there for simplicity’s sake. Anyway, it spurred me to begin looking into organ donation actually functions, and I mean, it makes sense, I just hadn’t really thought about it before that you technically have to have your body being kept alive to be able to donate the organs. A rotting organ probably isn’t very useful. That’s why it usually happens with terminal patients where the outcome is 100% they are gonna die. During COVID, with bodies piling up, and lack of open beds in hospitals, it at least makes sense to me that he would have ended up there, in case he didn’t wake up. It was pandemonium, at the time. Sadly, it seems to have kind of messed with his head to wake up in that situation, he’s a lot less trustful of doctors now.

          • NightoftheLemmy@sh.itjust.works
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            6 months ago

            It’s not the leg amputation, I believe, they considered him “as good as dead” when he went into coma. He knew he was getting an amputation. What he didn’t expect was that he would wake up to a nightmare of being prepped for his other organs to be removed.

    • dingus@lemmy.world
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      6 months ago

      Sorry to hear about your friend.

      I don’t think knowing this fact should discourage anyone from choosing to be a donor, though. It just means that yeah, it’s unlikely that you’ll be in a position where they can use your organs when you die, but it doesn’t hurt to be put on the list just in case.

      Iirc, I think a lot of organ donations end up being from people in motor vehicle accidents.

      I did get to see one case where they harvested the person’s bones instead of their organs. Didn’t even know that was a thing. I’m not sure if they died in a hospital setting or not. Might be you get more time to harvest bones as opposed to organs?

      • Snot Flickerman@lemmy.blahaj.zone
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        6 months ago

        Oh yeah, I hope I don’t dissuade anyone. I just hadn’t ever really deeply thought about it before, despite being a registered organ donor. It’s an interesting conundrum to me, because you need fresh, live organs, but you can’t reasonably take those from fresh, live people most of the time, so you need people who are literally on death’s door, who aren’t going to make it, to have their bodies kept artificially alive for the purpose of organ transfer. COVID was just a fucked up situation all around with not enough beds and so many people dying. My friend had a rough experience, but it’s hardly the norm.

        • dingus@lemmy.world
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          6 months ago

          Yeah I’m so glad that we’re not still in that disaster. I mean, I know COVID is still out there, but thankfully in much smaller numbers and we have a much greater capacity to treat it nowadays… especially without hospitals being overwhelmed.

          I’ve seen cases where patients actually ended up getting lung transplants in an attempt to save them with COVID. I handled the diseased lungs and they were so bizarre looking.

          • communism@lemmy.ml
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            6 months ago

            Wow, I didn’t know about the covid lung transplants. If you don’t mind me asking, could you describe the covid lungs/how they looked different to healthy lungs? Just morbidly curious

            • dingus@lemmy.world
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              6 months ago

              Sure thing. It’s been a while and I’ve only seen a few, but I’ll do my best.

              So normal lungs are puffy enough, and smooth and glistening on the outside. On the inside, they resemble a kitchen sponge. They are soft and pliable, and able to easily contract and expand to inhale and exhale air.

              In these COVID lungs, the outside was very ragged and shaggy. They were distorted with a lot of contracted areas. When you cut into it, there was some residual spongy areas, but a lot of it was white, firm, and solid. Think of how you might get a gnarly scar on your arm from a bit cut. Except instead of just being a single scar, almost the entirely of the lungs are scarred and firm. They aren’t able to contract and expand easily anymore because of how firm and rigid they’ve become. And because they no longer have the spongy architecture, it means many of the airspaces are lost and there is far less areas for potential gas exchange.

              So I’m not positive, but I’m fairly sure these COVID lung transplant attempts are primarily performed on younger patients after their body was able to clear the virus. It’s just that in these individuals, although they no longer had COVID, the resulting scar tissue absolutely destroyed their lungs. It doesn’t happen in every case thankfully…or even most cases, but when it does it’s a bit scary.

              I remember one of my cases being a young pregnant woman who had to be put on an ECMO machine (artificially oxygenates the blood when your heart and/or lungs cannot). I don’t know whatever came of her, but I hoped she was able to go on and lead a relatively normal life.

              You can read a bit more about this sort of thing here: https://en.wikipedia.org/wiki/Interstitial_lung_disease

  • GreyShuck@feddit.uk
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    6 months ago

    I am - in the UK - and I think that it should be opt out rather than opt in.

      • communism@lemmy.ml
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        6 months ago

        I think the vast majority of people who, even if they have some discomfort around the idea, would not care enough to opt out. The only effect of not allowing opt out, I think, would be to cause considerable distress to those who do care a lot about not donating. I don’t agree with their stance but I don’t think they should be forced to donate, especially if we can get enough organs just from making it opt out instead of opt in

  • hungprocess@lemmy.sdf.org
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    6 months ago

    Judging by this comment thread I’m not the only one who’s like “you can have them, but I don’t know if you’re going to want them”

  • Hildegarde@lemmy.world
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    6 months ago

    Healthcare in the US is run for profit. From 2020 estimates, they charge $1.6 million for a heart transplant. $1.3 million to transplant a pair of lungs, $880 thousand for a liver, and $440 thousand for a kidney. This is what for profit hospitals charge patients while giving your next of kin nothing for the organs that made it possible.

    They don’t pay you for your organs. They will still bill your estate for any care other than the organ removal despite your generosity.

    I would happily be an organ donor in a country with a non-profit healthcare system. But because of how heathcare is run in this country, I would rather my organs be left to rot.

    • Cethin@lemmy.zip
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      6 months ago

      I agree it’s horrible, but also I don’t see it as a large enough reason to not donate. The person receiving the organs is probably not the cause of this. It’s like not working because your labor mostly goes to the elites. It’s not a great plan, even if it does feel good.

  • u/lukmly013 💾 (lemmy.sdf.org)@lemmy.sdf.org
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    6 months ago

    Thankfully it’s opt-out in Slovakia, so yes.

    I’ll be dead. Do whatever with my body. Take the organs, fuck it, feed it to animals, compost it, use it as shooting target, turn me into soap, I won’t care. I literally won’t be able to care. Why even decline?

  • gregorum@lemm.ee
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    6 months ago
    • of course.
    • i’ll be dead and won’t need them while others might. how selfish of me not to give them over
  • Nachorella@lemmy.sdf.org
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    6 months ago

    I’ve been registered for a while now. I really don’t see a good reason not to, they only take 'em if I’m dead and what good are they to me then? Better going to someone in need.

    • exanime@lemmy.today
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      6 months ago

      Exactly this… Something that, at the moment of donation, literally means less than zero to you, could literally be a new lease in life for someone else

  • corsicanguppy@lemmy.ca
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    6 months ago

    Twin.

    I wish I could properly state the right of first sale he has, given it’s his DNA (well, he has mine, anyway).

    Fun fact: organs donated between perfect twins have no short- or long-term rejection issues. So unlike a regular donation that prolongs life for a decade or two, if he can drug me and steal my kidneys in sleazy Mexican motel, it’s a permanent fix.

    Hell, when I go, maybe he’ll take a spare kidney or pancreas or something, and just, you know, hook them up. Totally fine with me.

  • Fallenwout@lemmy.world
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    6 months ago

    No.

    My mom got double brain aneurism. Had her head cut open to put clamps on the leaking arteries.

    Slipped into a coma, few days later doctor came in to convince us for prepping her for organ donor, dad said it was too early.

    Another few days later doctors came in being really rude that all she was good for was organ donor. Had a heated conversation with my dad who got tired and said “fck off doctors”.

    Few days later she woke up. After revalidation she has a healthy life, this was 37yrs ago, she still lives, she is 71.

    My dad told my awake mum and since I was underaged opted me out for organ donor. Needles to say, I am reluctant to opt myself back in.

    Optional read: aftermath of the aneurism is that the part of the brain to process visual data was damaged. Other parts of her brain took that role but is not as effective. Her depth perception any further that 10m is gone. She has no vertical peripheral processing, so she has to tilt her head up or down to recognize what she noticed i’ her peripheral, one cannot imagine this seeing something but unable to recognize until you point your head at it :) in the end, very good outcome.

    • grrgyle@slrpnk.net
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      6 months ago

      Damn that’s double fucked. What a disappointing story. I’ve still got myself down for organ donation because it’s more likely to be done in good will than not, but that’s a very sad story.

      Do people pay for organ transplants where you are? I wonder if it’s not necessarily altruism but money that is pushing the doctor’s hand to jump the gun.

      • Fallenwout@lemmy.world
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        6 months ago

        No people do not pay, it is a national waiting list of first come first go. I live in Belgium, mom’s doctors were from France (specialists). We are supposed to be at the top of free and good health care. So this did not happen in some back lawsless country. (don’t mean this patronizing)

    • Omega_Haxors@lemmy.ml
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      6 months ago

      That’s like donating to wikipedia, you think you’re doing a good thing but they reveal pretty quickly how big of a mistake that actually was.

        • Omega_Haxors@lemmy.ml
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          6 months ago

          They require you give them an email and then once you do they spam it relentlessly.

          • Hazzia@discuss.tchncs.de
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            6 months ago

            Plus, they’re pretty notoriously well off at this point. If I’m gonna donate I prefer to go with the internet archive, since they actually need the help.

          • grrgyle@slrpnk.net
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            6 months ago

            Maybe they’ve changed because I donate and also contribute as an editor, and checking my email, I’ve only received one email* from them all year, and that was on January 6th titled “A record of your support for Wikipedia” from the Wikimedia Foundation, and it was a thanks and a tax receipt.

            Maybe there’s a consent checkbox somewhere that I don’t remember unchecking.

            *not counting notifications received in my role as contributor.

  • shiiiiiiiiiiiiiiiiit@sh.itjust.works
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    6 months ago

    I like the system in Singapore. Organ donation is mandatory, though you can complete a form to opt out. If you’re on the opt-out register, you have a lower priority to receive organ transplants. Fair is fair.

    • otp@sh.itjust.works
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      6 months ago

      I feel like Singapore should be the gold standard of how to do most things that don’t involve the justice system or surveillance. They seem to do most things right. Or maybe I’m just getting a golden picture? Lol

        • Allero@lemmy.today
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          6 months ago

          This is often seen as a positive measure as well, because it reduces the risk of bribery and other sorts of corruption. One wouldn’t risk an already great income for a chance to get a little extra.

          • stewie3128@lemmy.ml
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            6 months ago

            I think there are examples of it working, and examples of it not. Singapore’s system works as intended, but here’s a list of yearly salaries for high-paid heads of state >$500,000 USD (sources from Wikipedia). Draw your own conclusions.

            • Cameroon President: $620,000
            • Denmark Queen: $11,000,000
            • Hong Kong Chief Executive: $568,000
            • Japan Emperor: $3,000,000
            • Jordan King: $848,000
            • Kuwait Emir: $165,000,000
            • Luxembourg Grand Duke: $12,000,000
            • Norway King: $33,000,000
            • Oman Sultan: $7,000,000 (could be a very old number)
            • Qatar Emir: $33,000,000
            • Saudi Arabia King: $9,600,000,000 ($9.6 billion)
            • Singapore President: $1,400,000
            • Singapore Prime Minister: $1,600,000
            • Switzerland President: $507,000
            • Syria President: $576,000
            • Tonga King $2,100,000
            • United Arab Emirates President: $4,600,000,000 ($4.6 billion)
  • OsrsNeedsF2P@lemmy.mlOP
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    6 months ago

    Throwing this post out there for a bit of visibility and discussion.

    For me, I just registered 5 minutes ago. Idgaf what they use my body for, as long as someone learns something it’s a net positive at no expense to me.

      • Maltese_Liquor@lemmy.world
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        6 months ago

        As the great Frank Reynolds once said “Fill me up with cream, turn me into a cannoli, make a stew out of my ass. What’s the big deal? Bang me, eat me, grind me up into little pieces, throw me in the river. Who gives a shit? Ya dead, ya dead.”

  • MSugarhill@feddit.de
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    6 months ago

    In Austria you have to register to NOT be an organ donor. So we have about 99% donors (after brain death). I am a donor too, as I neither care about my body once I am dead nor bother to register for anything.

  • pixelscript@lemmy.ml
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    6 months ago

    As a very strong believer in Danny DeVito’s quote, “When I’m dead, just throw me in the trash!”, if any medical party is even remotely interested in dumpster diving for my parts when I’m done with them, they can have 'em. Better than throwing them in a box and taking up land in a cemetary. The less of my remains uselessly taking up space on this planet after death, the better. If I get my way upon my demise, anything they don’t take is going into the incinerator anyway.