• GONADS125@lemmy.world
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    10 months ago

    This pertains to the US:

    A lot of people are unaware of cancelation lists, and a lot of providers don’t really advertise that. When I was a casemanager for adults with severe mental illness, I would always ask to have my clients added to the cancelation list, and this would often get them in much sooner.

    Also butted heads with a receptionist last year when my client was literally experiencing congestive heartfailure and she wanted to schedule him like 1.5 months out to see his specialist about having a defibrillator implanted. I said it was unacceptable and said he needed to be added to the emergency openings I know the providers reserve. She got a look on her face and said “But I need to get provider approval for that…” I told her “I think you better talk to the doctor then.”

    Specialist eventually came over to scheduling and asked what was going on. The receptionist said what we wanted and asked if she would approve it, with a real dismissing inflection. The specialist said “Oh my god, yeah of course he’s approved for the emergency list…”

    Some of these things are just so overlooked/unknown by the general public. And sometimes you’ve got to be assertive and stick with your guns to be treated fairly and get the attention you deserve. Especially now more than ever. Our healthcare system was bad before, but it’s been so strained ever since covid…

    The healthcare system can be a nightmare for average people functioning well. It is so much worse for the population experiencing severe mental illness/with cognitive disability. This barrier for care plays a significant role in the reduced life expectancy in the disadvantaged population I worked with.

    Patients suffering from severe mental disorders, including schizophrenia, major depression and bipolar disorders, have a reduced life expectancy compared to the general population of up to 10–25 years. This mortality gap requires urgent actions from a public health perspective in order to be reduced. Source

    If anyone reading this has family or friends with severe mental illness or trouble with intellectual functioning, you may want to offer some support for doctors appointments. Honestly, everyone would benefit from having another person in their appointments for support and as a second set of ears.

    Anyone reading this with severe mental illness, don’t be afraid to reach out for support. If you don’t have a social support system, there are services out there to help. Try to find social services in your area to get some help navigating thru all the bullshit. And don’t give up hope.

    Always like to share this website with free evidence-based resources that I used all the time with my clients. I personally benefitted from the material as well.

    • agent_flounder@lemmy.one
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      10 months ago

      Reduced mental function definitely includes dementia; my mom had Parkinson’s disease and definitely needed my help and advocacy and memory.