bump amber whataboutism volcel police

I’ve looked into a mobility scooter. You have to pay for that, even to use one temporarily, so no. I don’t think I’d even be considered disabled enough for a wheelchair on the NHS and even if I was, you often have to pay towards that anyway. I have been lent crutches on the NHS for free but it’s hard getting around on them, I don’t have much upper body strength.

Thanks for the bump!

Very urgent bump amber whataboutism volcel police

Thanks for the bump!

Now my landlady’s car is having a problem. We already can barely pay for petrol, I’ve had to make a mutual aid post for help with the repairs. Another wonder of being disabled - if I could walk more than a few minutes it wouldn’t be an issue, I could just walk or get the bus. But the nearest bus stop is half a mile away. When you’re disabled every problem is magnified.

Thanks. I have some DIY B12 shots from ages ago and just injected myself with one in the hope it might help.

Thanks.

I was thinking something similar. The tingling is spreading into my hands now. I think I’ll phone the neurologist on Monday and ask for an appointment although god knows how long that will take. I don’t have the energy to go and sit in the emergency department for 10 or more hours waiting to be seen. I’ve had this tingling feeling before, recently prior to and during migraines but it was just in one side and went away when the migraine did.

Thanks, but it’s actually really starting to freak me out now. It just won’t go away and this is even scarier than having cancer. I’m worried I could lose the use of my legs or something. And if it still hasn’t resolved by Monday, I think I will have to cancel my upcoming foot surgery. it just doesn’t feel safe at all getting this area injected with a load of local anaesthetic when I am having these problems.

Exactly! A cushy lifestyle and so easy to get, why doesn’t everyone do it? Realistically they would probably claim that they are too much of a good person to do it. They’d probably say “I have self respect and I’m not a scrounger!” Or something.

And he’s far from the only one.

It’s reasoning like this why I got denied disability at my reassessment. A DWP disability benefit assessor told me I could cure my partial blindness by wearing glasses. When I explained that glasses don’t bring back missing sight, she said I could walk around constantly rotating my head in a circle to give me a full range of vision. This was part of the reasoning used for giving me zero points on my reassessment despite me being in active cancer treatment, recovering from a stroke and recently having become partially sighted.

Thank you.

And it’s definitely not free money. It’s a pittance that I’ve paid for with my life.

Hope it doesn’t take too long and you get some help soon.

It sucks how if you have an underlying medical condition, it makes everything else worse than it would otherwise have been. Hope you get some sleep!

Thanks. Having someone to talk to is a huge help. I don’t have anyone to talk to in real life. If I ever mention a complaint about my situation to my landlady she acts like I’m living the high life, saying I get free money and don’t have to do anything. Ignore the fact that I don’t get any “free money” until my appeal, and the fact that my entire life had to be ruined to get this “free money.”

Thanks. Yeah the doctors just don’t seem concerned about bald patches suddenly appearing at all. That’s why I had to google “hair loss blood tests” and trick them into doing them. So it’s possible there might be other tests that I don’t know about that could be done. But I have an appointment with the endo in August, maybe she might say something about it, although I doubt it. This is exactly how they kept fobbing me off, for over three years, previously and in the end it turned out to be thyroid cancer. It’s just so hard to get taken seriously, no-one cares, although right now I’m much more worried about the pins and needles.

I got the blood tests back today, and they say there’s nothing particularly wrong, everything is more or less within the normal range. Slightly reduced kidney function and very low TSH but my TSH is meant to be kept low to prevent the cancer from coming back, so that’s acceptable. The pins and needles are constant now though. I managed to get an appointment with the nurse, she said she’ll ask the GP and see what he thinks but she thinks it’s not a big deal. OK so over the past 2 weeks my hair has begun falling out to the point I have bald patches and I now have permanent pins and needles but according to medics, everything’s OK, nothing to worry about and they have no idea what the problem is. Very helpful, as ever.

Yeah I mean, blood clots, strokes, cancer, thyroid problems and headaches are just a few side effects of the pill but hey, it’s better to suffer that than to bring an autistic child into the world!