it was down to how other people/situations made them feel because they were autistic.
That’s a meaningless distinction. The end result is identical.
It would be foolhardy to say that you–an assumed neurotypical person–need to be close, personal friends with everyone in your life. You select your friends–and they select you–based on how well you fit each other. The fundamental problem is that autistic people, broadly speaking, don’t fit with neurotypical people. A high-functioning autistic person will eventually realize that, and realize just how utterly alone they are in life. They will realize that the people they think of as friends will never think of them as a friend. Their social circle, if they’re lucky, might consist of a small handful of people with overlapping interests, but are not an actual social support network.
I discovered this in 2014 when I failed to complete a suicide, and lost 95% of the people I believed were friends.
I am functional on a surface level. I have a job, I’m mostly self-sufficient, I’m married to someone that is also likely neurodivergent after having been in an abusive relationship for over a decade. I’ve noticed that the less able we are to mask, the more our social circle contracts. We can not reasonably expect that people will life us, or include us in their social circles.
I disagree, its not in my opinion a meaningless distinction at all. A difficulty in cognition might prevent a person from reading War And Peace. Thats a direct result of having a learning disability. Someone with a visual disability who cannot access audio books or braille versions of War And Peace is not being affected by their disability but by the fact an accessible version is not available.
You might argue the end result is the same - an inability to read War And Peace - but the point is that for the person with a visual disability the situation is fixable if society is prepared to make the effort.
In regards to your situation you’ve had terrible experiences but they are not down to the fact youre autistic, they’re down to the fact your NT ‘friends’ weren’t really friends at all. I’m sorry they let you down but I’m pretty sure I could find similar stories where nobody in the story was autistic.
Autism is a disability. A person with an IQ of 50 simply isn’t going to be able to understand War and Peace; you can’t dumb the book down sufficiently for someone to understand if they’re going to struggle all their life to be able to put on shoes that lace instead of using Velcro. People with dyslexia can listen to audiobooks; there’s no audiobook version of deep, fulfilling friendships and social support networks, because people on the autistic spectrum are going to have a hard time offering neurotypical people the what they need. A person that’s on the autism spectrum is never going to be able to have social interactions in the same way that neurotypical people can, and those social interactions are necessary to being able to function in society. Some people on the spectrum may be able to appear normal on a surface level and will be able to get by, but it’s fucking exhausting. People that have the misfortune to be lower functioning than I am may not be able to mask effectively at all.
That’s without even getting into constrained interests, difficulty with coordination and forming positive habits–I still struggle to remember to brush my teeth daily in my middle age–or executive dysfunction.
I never claimed autism wasn’t a disability. The fact that autistic people are disabled in some ways isn’t in question. But its neither just a disability or - like all disabilities - something that isn’t disabling by virtue of the world its part of rather than its intrinsic nature.
For example, you say an autistic person cannot experience social interaction in the same way as a non autistic person. True. But the non autistic person can, with very little adjustment, be aware of that. My kids have good relationships with NT friends and whilst they might not experience them in the same way as NT friendships, they still find them fulfilling.
Those people are likely your kids’ best friends. Your kids are likely not their best friends.
Aside from marrying someone that is also neurodivergent, it is unlikely that your children will ever be the best friend of another person. They may be the friend that offers the most help, the person that always shows up to the party with lots of food and a keg, the ones that are always there with tape, boxes, and a truck when someone needs to pack up and move, the one with a spare couch when someone needs a place to stay for a couple days. …But not the best friend. If they’re very, very lucky, they’ll end up married to someone else that is also neurodivergent; otherwise, they may end up married to someone that is neurotypical, and will be taken advantage of and/or abused by their partner for their entire life.
That’s what you’re missing.
Social interactions end up being lopsided, and can never be anything but.
There’s a possibility of all that, sure. But there’s also a possibility of none of that. My autistic kids relationships with their friends is different than my non autistic kids relationships with their friends. I’m not sure I’d describe it as lopsided but I see what you’re getting at. Be that as it may, neither of them, as far as I can tell, are unsatisfied or unhappy with their various relationships. And certainly not to the point where either they or I would describe their lives as ‘ruined’.
I didn’t start to realize how lopsided it all was until I was into my 20s, and then started to realize how much I was missing in life because of a disability. If your kids are younger than, say, high school, it they probably haven’t come to that realization yet.
The fundamental problem is that autistic people, broadly speaking, don’t fit with neurotypical people. A high-functioning autistic person will eventually realize that, and realize just how utterly alone they are in life. They will realize that the people they think of as friends will never think of them as a friend.
First, I’m sorry for what you’ve been through. But from my personal experience, I know that I have three friends who have autism and/or ADHD. In each case, I did not know this until they told me. If I can’t even know who is autistic without them telling me, how can I treat them differently?
Now I understand that it is possible that some behaviours of mine could make my autistic friends uncomfortable, while not affecting my other friends. But if I am doing something like that, it is out of ignorance rather than malice, and I would of course adjust my behaviour if asked to.
So I don’t get why you think autistic people ‘don’t fit with neurotypical people’. I have friends who speak other languages, and autism is also, in a sense, speaking a different ‘body language’. With some effort, we should be able to improve communication.
The fact that you just aren’t understanding what I’m saying is demonstrating my point. You aren’t able to understand my point of view, and think that everything can just be solved by people working harder. It’s the same kind of belief that says that depressed and anxious people can be cured by just thinking happy thoughts and touching grass.
Can you be more specific? Why cannot autistic people fit in with others? Is it that others recognise them as being different and exclude them? Or is it that there are differences in the way we speak or behave that make you uncomfortable? And if it is the latter, what in particular should we change?
That’s a meaningless distinction. The end result is identical.
It would be foolhardy to say that you–an assumed neurotypical person–need to be close, personal friends with everyone in your life. You select your friends–and they select you–based on how well you fit each other. The fundamental problem is that autistic people, broadly speaking, don’t fit with neurotypical people. A high-functioning autistic person will eventually realize that, and realize just how utterly alone they are in life. They will realize that the people they think of as friends will never think of them as a friend. Their social circle, if they’re lucky, might consist of a small handful of people with overlapping interests, but are not an actual social support network.
I discovered this in 2014 when I failed to complete a suicide, and lost 95% of the people I believed were friends.
I am functional on a surface level. I have a job, I’m mostly self-sufficient, I’m married to someone that is also likely neurodivergent after having been in an abusive relationship for over a decade. I’ve noticed that the less able we are to mask, the more our social circle contracts. We can not reasonably expect that people will life us, or include us in their social circles.
I disagree, its not in my opinion a meaningless distinction at all. A difficulty in cognition might prevent a person from reading War And Peace. Thats a direct result of having a learning disability. Someone with a visual disability who cannot access audio books or braille versions of War And Peace is not being affected by their disability but by the fact an accessible version is not available.
You might argue the end result is the same - an inability to read War And Peace - but the point is that for the person with a visual disability the situation is fixable if society is prepared to make the effort.
In regards to your situation you’ve had terrible experiences but they are not down to the fact youre autistic, they’re down to the fact your NT ‘friends’ weren’t really friends at all. I’m sorry they let you down but I’m pretty sure I could find similar stories where nobody in the story was autistic.
Autism is a disability. A person with an IQ of 50 simply isn’t going to be able to understand War and Peace; you can’t dumb the book down sufficiently for someone to understand if they’re going to struggle all their life to be able to put on shoes that lace instead of using Velcro. People with dyslexia can listen to audiobooks; there’s no audiobook version of deep, fulfilling friendships and social support networks, because people on the autistic spectrum are going to have a hard time offering neurotypical people the what they need. A person that’s on the autism spectrum is never going to be able to have social interactions in the same way that neurotypical people can, and those social interactions are necessary to being able to function in society. Some people on the spectrum may be able to appear normal on a surface level and will be able to get by, but it’s fucking exhausting. People that have the misfortune to be lower functioning than I am may not be able to mask effectively at all.
That’s without even getting into constrained interests, difficulty with coordination and forming positive habits–I still struggle to remember to brush my teeth daily in my middle age–or executive dysfunction.
I never claimed autism wasn’t a disability. The fact that autistic people are disabled in some ways isn’t in question. But its neither just a disability or - like all disabilities - something that isn’t disabling by virtue of the world its part of rather than its intrinsic nature.
For example, you say an autistic person cannot experience social interaction in the same way as a non autistic person. True. But the non autistic person can, with very little adjustment, be aware of that. My kids have good relationships with NT friends and whilst they might not experience them in the same way as NT friendships, they still find them fulfilling.
Those people are likely your kids’ best friends. Your kids are likely not their best friends.
Aside from marrying someone that is also neurodivergent, it is unlikely that your children will ever be the best friend of another person. They may be the friend that offers the most help, the person that always shows up to the party with lots of food and a keg, the ones that are always there with tape, boxes, and a truck when someone needs to pack up and move, the one with a spare couch when someone needs a place to stay for a couple days. …But not the best friend. If they’re very, very lucky, they’ll end up married to someone else that is also neurodivergent; otherwise, they may end up married to someone that is neurotypical, and will be taken advantage of and/or abused by their partner for their entire life.
That’s what you’re missing.
Social interactions end up being lopsided, and can never be anything but.
There’s a possibility of all that, sure. But there’s also a possibility of none of that. My autistic kids relationships with their friends is different than my non autistic kids relationships with their friends. I’m not sure I’d describe it as lopsided but I see what you’re getting at. Be that as it may, neither of them, as far as I can tell, are unsatisfied or unhappy with their various relationships. And certainly not to the point where either they or I would describe their lives as ‘ruined’.
I didn’t start to realize how lopsided it all was until I was into my 20s, and then started to realize how much I was missing in life because of a disability. If your kids are younger than, say, high school, it they probably haven’t come to that realization yet.
First, I’m sorry for what you’ve been through. But from my personal experience, I know that I have three friends who have autism and/or ADHD. In each case, I did not know this until they told me. If I can’t even know who is autistic without them telling me, how can I treat them differently?
Now I understand that it is possible that some behaviours of mine could make my autistic friends uncomfortable, while not affecting my other friends. But if I am doing something like that, it is out of ignorance rather than malice, and I would of course adjust my behaviour if asked to.
So I don’t get why you think autistic people ‘don’t fit with neurotypical people’. I have friends who speak other languages, and autism is also, in a sense, speaking a different ‘body language’. With some effort, we should be able to improve communication.
The fact that you just aren’t understanding what I’m saying is demonstrating my point. You aren’t able to understand my point of view, and think that everything can just be solved by people working harder. It’s the same kind of belief that says that depressed and anxious people can be cured by just thinking happy thoughts and touching grass.
Can you be more specific? Why cannot autistic people fit in with others? Is it that others recognise them as being different and exclude them? Or is it that there are differences in the way we speak or behave that make you uncomfortable? And if it is the latter, what in particular should we change?