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Joined 9 months ago
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Cake day: October 4th, 2023

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  • Sometimes keeping a symptom journal or diary can help your medical providers piece things together. They are only seeing you once for 10-30 minutes, but you’re living in your body and experiencing symptoms way more frequently. Don’t log obsessively, but maybe once a day review your pain (rated 1-5) and write down any noteworthy symptoms or episodes. And as someone else mentioned, get good at condensing your medical “story” to date, including your current symptoms.

    Doctors will always go for the simplest explanation, even if it’s wrong. This is how they are trained (in the west, anyway). So don’t give up! Continue insisting on a proper diagnosis. Get another opinion. See a different specialist. If you find it difficult to advocate for yourself, imagine if this was your friend. How many mountains would move to get the same answers for a dear friend? And apply that logic and compassion to yourself. Have a bestie come with you to appointments if they are willing to.

    A big part of the “suck” in this process is the not knowing. Will you be in pain forever? Will you get better? Will you get worse? Is it really a mystery illness? Will you ever get a diagnosis? With chronic pain you’ll find yourself exhausted often with the effort required to ignore the pain. So feel the pain sometimes. Lean into it. You may find it’s a relief to feel it instead of trying to block it out.

    It’s maybe also worth accepting that these issues may never totally resolve. If they do, great. But what if they don’t? How can you live a happy and fulfilling life (which millions of people do with chronic pain/disability) even if it stays the same?

    Lastly, I want to say that you have a separate problem, which is the lack of social support you are getting from your family. They are gaslighting you about your illness - of course you know your body best and are experiencing what you say you are. You are young and may depend on them financially, so that’s a needle you have to thread. But I’d encourage you to spend more time with friends who love and believe you.

    If you have access, it’s worth working with a therapist on all of this. From what you’ve described, you have been left all alone to grapple with a disability that no one can even explain. That is an awful lot for someone to hold by themselves. Whatever happens with your illness, I hope you are able to get the love and support you deserve - which may never be offered by your family.








  • Hi! I’m a wedding florist and educator in the US. I also have PiHole running at home (thanks to my partner) and feel the same way about social media - absolutely hate it, no personal accounts, and it’s only for the business.

    Edited to add: I draw a hard line in my business with paying Meta or Google to advertise. I have never paid Zuck a dime. I also refuse to use TikTok because it’s a privacy nightmare.

    Here’s how I handle different marketing channels:

    SEO - my bread and butter - allows me to blog useful things and not feel slimy. Try to blog about things “upstream” from your services that couples would hire first - venues, planners, caterers maybe.

    Instagram - I’m a florist, it’s a must. I used to use a separate device but after forgetting it at a wedding for behind-the-scenes shots, and the having to transfer everything over, I just gave up. I have Instagram on my main phone and it annoys me. I have mic/photo permissions turned off unless I post a story/reel. I use Tailwind for IG and Pinterest static posts.

    Facebook - I don’t use the app, just desktop. have a FB page but I rarely log in. Tailwind allows me to post my IG post to FB without logging in.

    Pinterest - I don’t use the app, just desktop. And I use Tailwind to schedule. To be honest I do not get any leads from Pinterest, so I stopped caring about it.

    Networking - This is another key source of leads for me. We have several local wedding vendor groups here, and I belong to all of them. And I go to meetings regularly. I highly encourage you to go out and meet the people who will eventually refer you! (But never ask for a referral/preferred vendor until you’ve worked together at least once.)

    The Knot/WW - Worth having a free listing. Only worth having a paid listing if your service is low cost and you’re interested in volume. Are there French sites like those you could be listed on, some kind of directory?

    Wedding shows - I’ve never done a wedding show but some people have lots of success. Whatever you do, make sure you make them book a consultation with you right there at the booth. Otherwise you will lose them. It’s not enough to gather emails (although, do that too) because they will be getting a billion emails after the show from vendors. Be the first in their inbox. Have an incentive for scheduling their consult that’s not a discount (e.g. bigger photo book if they end up booking with you or something).

    Hope that helps! Never keep doing a marketing method that isn’t bringing you the right people. It’s a waste of your time and you can’t do all these things, you’ll go mad! Please DM me if you have questions or wanna chat more, I’m happy to help. Je parle français aussi, mais seulement après café :)




  • My most frequent issue is that links created through an email service provider like ConvertKit will get blocked by PiHole.

    I’m a small business owner and so I get a lot of other people’s newsletters, on purpose. I like seeing what mentors and colleagues are doing with their businesses. But a link to their website, a blog post, anything really will almost always be blocked by PiHole if it’s sent via an ESP. This kind of “tracking” (email clicks from a small biz I know and trust) is something I am totally fine with.

    It’s easy to disable for 1 minute to click through, but sometimes I forget that the PiHole is active and I can’t figure out why the links aren’t working.